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Saturday, March 20, 2010
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Can Twitter, Facebook do the impossible and save one life?



Almost every day, your inbox might receive an e-mail asking for support in a case of a terribly sick patient who only has months or weeks to live. In a lot of cases, the stories are actually brought forward to steal funds and we learn to discard them, regardless of the case being real of not.

In the case of young Silvana Novak from Croatia, she could only wish that a circular e-mail, large amount of tweets or Facebook messages were fake and that she was okay. Unfortunately, this is not to be. Silvana learned a terrible diagnosis- acute myelodysplastic leukemia in the final stage. The diagnose is that she has a few weeks to live but brace for impact - Silvana only learned of her sickness after feeling fatigued. Given that she is pregnant, this was missed by the doctors until she collapsed. Mis-diagnosis is something that might happen to each and every one of us - for instance, 11 years ago Ed-in-Chief of BSN* almost died after being miss-diagnosed with stress instead of early liver failure due to taking prescribed medication [the medication was withdrawn after reports of deaths].

Going back to Silvana, doctors advice was to perform an immediate abortion, but love for her child was bigger. Silvana took the risk and won, even making in remission during pregnancy. Beautiful, healthy boy Leo was born only few days ago. Unfortunately, the stress of the birth was such that the sickness was back. Unfortunately, the Croatian Health Department and the whole red taped European system that a lot of Americans like to think it works - left her to die. The only thing that can help her is treatment abroad by stem cell transplantation. The unfortunate result of living in a country with average salary barely passing the 1,000 USD mark means Silvana had no time to save for the 220,000 Euro [330,000 US dollars] needed for the procedure. The time is ticking and there are only four doctors in the world that can help her: in New York, Italy, Hanover and Singapore.

But the hope is here through the power of the Internet. A lot of mainstream media usually likes to say that Internet "pulls people apart" but this case is showing that's nothing else but FUD. Thanks to Croatian Internet community, tweeting about this on Twitter [and easy retweeting - a brand new option recently implemented on Twitter], opened a Facebook group, numerous blogs and what happened is that mainstream media and various Internet portals caught up and starting to writing about this life-of-death situation.

In just half a day, this social networking push managed to do the impossible, something thatadministration couldn't do in months; they donated 100,000 Euro. Thepeople are trying to help donating small amounts of money as much as they can, pushing the red tape around.

Can Internet give this women a chance to live, well we hope so, and we will keep our fingers crossed?

Transplantation of the stem cells and terapy cost 220.000 euros, and the donations can be made at the bank account number 2340009-1510407522 in Privredna banka Zagreb d. d.

People outside Croatia can donate on by using a foreign account:
HR42 2340 0091 5104 0752 2
PRIVREDNA BANKA ZAGREB D. D.
10000 Zagreb, Franje Rackoga 6, Croatia
SWIFT CODE:PBZGHR2X

Croatian bloggers and Internet community spread the word and it took less than half of the day ti collect the 100,000 Euro. BSN* joined and donated a portion of our monthly earnings. We wish our best to Novak family and hope that everything will resolve. If there was any doubt what is the power of the Internet, this is pretty much the best test case you can find. Good luck and Godspeed.


© 2009 - 2010 Bright Side Of News*, All rights reserved.



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Comments:

great work.... by: Anonymous on 2/16/2010
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Thanks.. by: Anonymous on 2/16/2010
Thanks for such a beautifully composed, informative article.I think your designing work to this is really great .I really appreciate your work to this site.So thanks for it.I hope you can continue this type of hard work to this site in future also..Because this blog is really very informative and it helps me lot.
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by: Anonymous on 11/22/2009

Great article, thanks! I am an austrian with an croatian immigration background so i can identifiy pretty much with the case. I have to clarify two points here:

There is no european health care system so-to-speak. Rememember, europe and especially the European Union - hahaha - is not a political unity like the United States. If somebody talks about the european health care they mean the health care in countries like germany, france, austria and the like. In very rich WEST-european countries. In eastern europe there is nothing like this.

Another one is the threat of mis-diagnosis. It´s pretty real, folks. My father died recently of the rare pleuramesothelia, it´s a very lethal lung tumor. Doctors believed a long time his heart was the problem because they couldnt find anything in the lungs. They attributed water in the lungs to a heart malady!
by: Daniela Kustre on 11/20/2009
Well the doctors say that the transplantation of the stem cells would give her 5 or more years, it is not much, but long enough
by: Anonymous on 11/19/2009
Are there any scientific proof that a transplantation of stem cells would help here? I think that the collected funds should be used in a way that they help the boy.
Too cool by: Anonymous on 11/18/2009
Sometimes we have to be reminded that we are a tribe and it does take a caring group of people to help the other ones.
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March 20, 2010, 20:00 UTC

Dear Readers,

In order to enable new features for the site, we'll be temporarily offline on Saturday, March 20th 2010 at noon Pacific, 3PM Eastern or 8PM/20:00 GMT/UTC. We should be offline for 15-25min, after which you should be able to see new features.

Thank You for understanding,

The BSN* Team

© 2009 - 2010 Bright Side Of News*, All rights reserved.